Maturity Onset Diabetes of the Young Group
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Man are we boring!!
Started Aug 24
Computer back up and running
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Started this discussion. Last reply by tealas Aug 27.
My computer is fried!
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There is evidence that higher than normal blood sugars start causing the beta cells to become dysfunctional, and then to die-off. The rough numbers that Jenny Ruhl ("Blood Sugar 101") has compiled from a review of the research is that FBG's over 1...
I gave the school nurse a copy of our MODY type desription and article from the Exeter site and our doctor's number if she had any questions at all. She has been very good. Teachers always have to be educated each year but they usually get on boar...
Hi,
I do what you do. I explain MODY, and that he can have one piece of cake, diet soda, (we usually bring it) No other sugars or treat. My son does not typically like the carb loaded foods. He will eat the frosting but no cake etc. I was the same...
I was on Prandin for a while, it helped with numbers while eating carbs but as I stayed on Byetta longer I did not need it any longer. The Byetta is the best, their is weight loss rather than weight gain and the longer your on it the more energy a...
Hey everone!! I was just online checking things on here...welcome to our newest members! We sure are boring though...not much action on here. Lets chat...how is everyone doing? How has the summer been?
It seems like that is true for all oral medications... they work for a while and then the dose that used to work, no longer works, so you increase the dose but then it doesn't matter how much you take it doesn't deliver...
Seems like the oral agen...
Comment Wall (7 comments)
- At 8:49am on April 5, 2009,
Mody sculptor said…
- They did consider a pump for Dylan and I beforewe discovered Byetta for me and the exact mutation issue. We discuss the optionofpills for Dylan at each visit. We have not taken the jump yet.
- At 7:42pm on March 8, 2009,
Brenda Cahill said… - Hi Jayme
Have just joined this site are there any members who have Mody 5, my son has this rare chronic condition and we are trying to find anyone who has Mody 5 - Brenda
- At 12:09am on December 28, 2008,
Lorie said… - How about adding some recipes using Stevia?
- At 9:14am on December 24, 2008,
Paula Steimel said…
- HI Jayme,
I found your discussion of A1Cs really interesting. Our peds endo. continues to monitor the children with A1Cs, but maybe we shouldn't be focusing so much on A1C numbers. My children's blood sugars seem to run similar to those of your children, but sometimes also reach a little higher after eating- 200-400s. I often wonder if the meter is working right!
Can you tell me more about natural versus artificial sweeteners and their effects?
- At 1:28pm on October 6, 2008,
Ginamarie said… - I have MODY 2 and have passed it onto two of my three sons. It is amazing how little information there is out there about MODY.
- At 8:50pm on September 17, 2008,
Jayme Dautrich said…
- Hi Bridget! I am so glad to hear from you!!! Do you know what # MODY your family has? We are MODY #2. Please be patient with me, I am really new having my own web page, and I am learning by trial and error! How long have you known your family has MODY?
- At 8:41pm on September 17, 2008,
Bridget said… - Hi Jayme, I read your comment on the challengediabetech site and they told me today about this support group you just started. My husband and one of our children have MODY. My husband's family is affected in many ways. His dad, and his sister also have it. I am so glad to find someone who also struggles with this rare condition. Please contact me and I'd love to exchange stories and tips. Thanks so much!!!
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