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Mody 2
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Started this discussion. Last reply by Mody sculptor Aug 24.

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Mody sculptor replied to momtomody2's discussion 'Mody 2'

Hi, My son and I both have Mody 2 R36W, the tiredness is definately from Mody 2. I have dawn phenomena as well, high numbers in my fasting testing before I eat. My son is currently only diet controlled. We do diet drinks only too. I get worried a...

August 24

Lisa replied to momtomody2's discussion 'Mody 2'

Hi, my 12 year old son has MODY 2 and was diagnosed a year ago. The reason I took him to the doctor was for being tired and that is how we discovered the slightly high glucose. It sounds like tiredness may be a side effect of MODY 2. My son just w...

May 23

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May 23

Paula Steimel replied to momtomody2's discussion 'Mody 2'

Thank you for sharing more information. I think our children are similar, with the exception that my boys will get blood sugar readings as high as 300-400 in the late afternoon or early evening, especially if they miss their glyburide dose. (They ...

May 22

momtomody2 replied to momtomody2's discussion 'Mody 2'

Hi Paula, My daughter, Emily, at around 3 years old had glucose in her urine at her annual well visit. Her pediatrician said we would just watch her. The next sick visit he checked it again and there was glucose in her urine and I believe her blo...

May 15

Paula Steimel replied to momtomody2's discussion 'Mody 2'

Hi, I would love to hear more about your story, current care, etc. Paula- mom to four with MODY2

May 15

momtomody2 added a discussion

Mody 2

My six year old daughter was diagnosed with MODY 2. We are unsure about anyone else in the family. I have an 18 month old daughter but she has not been tested or shown any type of symptoms.

May 9

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February 8

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February 5

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February 5

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At 7:26pm on February 8, 2009, MODY-RN said…: Interesting... good luck to you guys. From what I have read, MODY 2 is not too bad to have.

At 10:46am on February 6, 2009, MODY-RN said…: You are fortunate that you know what type of MODY she has. We are still guessing about our (myself, 18 year old daughter, my Mom and Brother) type as insurance won't pay for testing. We all take oral medications at this time.
There are some helpful websites out there that have some good information about MODY but overall it is not well known. Understanding is improving. Google MODY... Is your daughter seeing a pediatric endocrinologist? If not, she should be. Good luck to you.