sofaraway
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  • London
  • United Kingdom
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sofaraway (Nikki) MODY 3
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Started this discussion. Last reply by sofaraway Dec. 4, 2008.

Hello
4 Replies

Started this discussion. Last reply by MODY-RN Mar 12.

 

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I have asked the question to a couple of Dr's, (the top MODY researchers) here if there is any damage caused to the kidneys by spilling glucose and the answer has been 'no'. But like you I am not completley convinced. What is your renal threshold?...
May 26
thankyou teala for adding your information. I am also from a MODY 3 family. I found it interesting to read about the renal problems your family has faced. In my family the cardiac problems have been clearly evident but I don't know of anyone with ...
May 25
I was on gliclazide, it's in the same class of drug but not avaliable in the US. I started on a very small dose 20mg, which was 1/4 of a tablet. It has to be a much smaller dose than would be given to a type2, because people with MODY are very sen...
April 12
Do they think your son was the where the original mutation occurred? I know form speaking to the lab guy from Exeter that they have only found a couple in the 100's of different MODY families they have. Has the other family members been tested?
April 2
Hi Brenda, does you son also have renal problems, that seem to go along with MODY5? Hope that his year improves
March 30
Insurance testing can be upwards of $3000 (and that is just the cap on what the insurance will charge a private party). My daughter is on 2 mg Amaryl a day now to try and regulate her sugars. She is horrible about testing so she doesn't have much ...
March 12
I really think it is a crime that the insurance won't pay for these tests given the other things they will pay for...but that is another issue!! Anyway, my dh was just at his check up with the MODY Endo..she is monitoring him close for the next mo...
March 9
Hi Nikki, Sorry I have not been online for a bit!! I am trying to keep up!! I am hopeful that I will be online here at least once a day even if it is with just chit chat!! Jayme
March 9

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At 6:00pm on December 3, 2008, Jess said…
I think it's just stress from all the funeral crap. I'm glad the funeral was today it was hard to go through but I'm glad it's done....
At 5:40am on December 3, 2008, Jess said…
I'm hoping to met a few more people but I'm being shy I dunno why though XD
At 5:25pm on December 1, 2008, Jess said…
Hey Nikki :) I'm here now :)
 
 

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